Alyssa was first diagnosed with stage 4 high risk Neuroblastoma at 26 months old in November, 2005. The tumor was wrapped around her kidneys and aorta. She had a total of six surgeries and one brain surgery and was cancer free until the cancer returned in May, 2007. She had many more cycles of chemotherapy and radiation and has been cancer free since May, 2008.
Alyssa participated in the neuroblastoma vaccine study at Memorial Sloan-Kettering Cancer Center in New York City, which was partially funded by the Soupy for Loopy Foundation in April, 2009. Without this funding, this trial may not have been an option for Alyssa.
Alyssa’s last day of her vaccine was on July 14, 2010; she did not experience any major side effects except for a huge welt at the injection site. Her medi-port was removed in December, 2011. “Alyssa cried before her port was removed; she became so used to it; it became part of her! It’s so hard for a child to understand what is really going on as this is all she knows since the age of 2” said Alyssa’s mother. “We, as her parents, felt joy in our hearts – it’s so hard to express! We also had flashbacks of the years of everything she has overcome. Our daughter is our hero and there are too many words to describe her – she is filled with courage, she is amazing, strong, loveable, and she gives a lot of kids hope. This is a very huge milestone in a cancer patient’s life. Her doctors and nurses where were so happy with Alyssa that they gave her a big hug. They have seen her grow up into a beautiful young lady. Their outstanding work has paid off!"
Alyssa’s parents shared with all of us – “Our life has changed so much since Alyssa’s diagnosis with neuroblastoma and we are extremely grateful for all the love and support we have received through this journey and are so blessed to have great people and doctors working so hard to find a cure!”
How Is Alyssa Doing Today? Alyssa has been cancer free for six years. We are very pleased to hear such good news and we wish Alyssa and her family all the best in the months and years ahead.
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